Advocacy letter for people who were on CGRPs

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CGRP inhibitors are a breakthrough treatment for migraine prevention, offering hope to patients who haven’t found relief with other therapies. However, many Canadians struggle to access these medications due to high out-of-pocket costs and limited provincial coverage. If you’ve been on a CGRP treatment, this advocacy letter can help you make the case for including CGRPs on your province’s public drug formulary. Use this letter to share your personal experience, highlight the impact of migraines on your quality of life, and urge policymakers to provide equitable access to this essential care.

Make Your Voice Heard ! - Past CGRP Patients

This form can be used by Canadian patient advocates to contact their local government representatives and
provincial health minister.

Name*
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Subject*
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Dear [Name of the Government Representative will be added automatically]
Message Top Part*
First half of the letter
I am writing to you as my elected official to raise awareness and discuss the new anti-CGRP class of medications to treat migraine. These new, effective, safe, and tolerable medications are life-changing for many migraine patients and currently are not covered by our provincial drug program. Experts estimate that migraine affects 4.5 million (12%) of Canadians and that 1-2% live with chronic migraine. People with chronic migraine experience 15 or more headache days per month. I am one of these people and am greatly impacted by my migraine disorder and there is no cure. Finding and accessing an effective medication is critical. Although current therapies are sufficient for some Canadian patients to manage their migraine, for many, like me, these therapies are ineffective leaving me in pain, bedridden and disabled. There have not been any effective preventative medications designed to treatment migraine since 1993. These new CGRP’s have given me back many days of normal function and improved quality of life.
Insert your personal story here (optional)
For more impact, you can personalize the message with your lived experience. Think about including
• What life was like pre-treatment on CGRP
• What life was like once you started a CGRP (include brand name)
• What the benefits an effective treatment made to quality of life, work life, home life, etc. (ie. reduction in number or severity that allowed you to do X)
• Why you are not taking CGRP and what your personal situation is like.
Message Bottom Part*
Bottom part of the letter
As a person living with chronic migraine, I am asking the government to include CGRP’s on our drug plan immediately. Without access to this medication, I have no quality of life. I am not able to be a productive member of society and I not able to be the parent and spouse compared to when I am migraine free or have reduced severity and/or frequency. I will continue to be a burden to the healthcare system with frequent visits to the emergency department and appointements with my doctor(s). This stress on our healthcare system can be avoided by including these medications on our provincial drug plan. I hope by what I have shared will help to reduce stigma and contribute to your team making a policy to include CGRP’s on our provincial formulary. Public coverage for me is the only way I can access this class of medications. Sincerely,
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Advocacy letter for people who were on CGRPs

Make Your Voice Heard ! - Past CGRP Patients

Does migraine impact you or someone you care about?