Advocacy letter for Past CGRP Patients

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First half of the letter

I am writing to you as my elected official to raise awareness and discuss the new anti-CGRP class of medications to treat <a class="glossaryLink"  aria-describedby="tt"  data-cmtooltip="<div class=glossaryItemTitle>Migraine</div><div class=glossaryItemBody>&lt;span style=&quot;font-weight: 400;&quot;&gt;A migraine is a powerful headache that often happens with nausea, vomiting, and sensitivity to light. Migraines can last from 4 hours to 3 days, and sometimes longer.Most people start having migraine headaches between ages 10 and 40. But many women find that their migraines improve or disappear after age 50.&lt;/span&gt;&lt;i&gt;&lt;span style=&quot;font-weight: 400;&quot;&gt;Référence : webmd.com, &lt;/span&gt;&lt;/i&gt;&lt;i&gt;&lt;span style=&quot;font-weight: 400;&quot;&gt;https://www.webmd.com/migraines-headaches/migraines-headaches-migraines#1&lt;/span&gt;&lt;/i&gt;&lt;i&gt;&lt;span style=&quot;font-weight: 400;&quot;&gt;  consulted on july 4&lt;/span&gt;&lt;/i&gt;&lt;i&gt;&lt;span style=&quot;font-weight: 400;&quot;&gt;th&lt;/span&gt;&lt;/i&gt;&lt;i&gt;&lt;span style=&quot;font-weight: 400;&quot;&gt;,2019.&lt;/span&gt;&lt;/i&gt;</div>"  href="https://migrainecanada.org/glossary/migraine/"  data-gt-translate-attributes='[{"attribute":"data-cmtooltip", "format":"html"}]' tabindex='0' role='link'>migraine</a>. These new, effective, safe, and tolerable medications are life-changing for many <a class="glossaryLink"  aria-describedby="tt"  data-cmtooltip="<div class=glossaryItemTitle>Migraine</div><div class=glossaryItemBody>&lt;span style=&quot;font-weight: 400;&quot;&gt;A migraine is a powerful headache that often happens with nausea, vomiting, and sensitivity to light. Migraines can last from 4 hours to 3 days, and sometimes longer.Most people start having migraine headaches between ages 10 and 40. But many women find that their migraines improve or disappear after age 50.&lt;/span&gt;&lt;i&gt;&lt;span style=&quot;font-weight: 400;&quot;&gt;Référence : webmd.com, &lt;/span&gt;&lt;/i&gt;&lt;i&gt;&lt;span style=&quot;font-weight: 400;&quot;&gt;https://www.webmd.com/migraines-headaches/migraines-headaches-migraines#1&lt;/span&gt;&lt;/i&gt;&lt;i&gt;&lt;span style=&quot;font-weight: 400;&quot;&gt;  consulted on july 4&lt;/span&gt;&lt;/i&gt;&lt;i&gt;&lt;span style=&quot;font-weight: 400;&quot;&gt;th&lt;/span&gt;&lt;/i&gt;&lt;i&gt;&lt;span style=&quot;font-weight: 400;&quot;&gt;,2019.&lt;/span&gt;&lt;/i&gt;</div>"  href="https://migrainecanada.org/glossary/migraine/"  data-gt-translate-attributes='[{"attribute":"data-cmtooltip", "format":"html"}]' tabindex='0' role='link'>migraine</a> patients and currently are not covered by our provincial drug program.

Experts estimate that <a class="glossaryLink"  aria-describedby="tt"  data-cmtooltip="<div class=glossaryItemTitle>Migraine</div><div class=glossaryItemBody>&lt;span style=&quot;font-weight: 400;&quot;&gt;A migraine is a powerful headache that often happens with nausea, vomiting, and sensitivity to light. Migraines can last from 4 hours to 3 days, and sometimes longer.Most people start having migraine headaches between ages 10 and 40. But many women find that their migraines improve or disappear after age 50.&lt;/span&gt;&lt;i&gt;&lt;span style=&quot;font-weight: 400;&quot;&gt;Référence : webmd.com, &lt;/span&gt;&lt;/i&gt;&lt;i&gt;&lt;span style=&quot;font-weight: 400;&quot;&gt;https://www.webmd.com/migraines-headaches/migraines-headaches-migraines#1&lt;/span&gt;&lt;/i&gt;&lt;i&gt;&lt;span style=&quot;font-weight: 400;&quot;&gt;  consulted on july 4&lt;/span&gt;&lt;/i&gt;&lt;i&gt;&lt;span style=&quot;font-weight: 400;&quot;&gt;th&lt;/span&gt;&lt;/i&gt;&lt;i&gt;&lt;span style=&quot;font-weight: 400;&quot;&gt;,2019.&lt;/span&gt;&lt;/i&gt;</div>"  href="https://migrainecanada.org/glossary/migraine/"  data-gt-translate-attributes='[{"attribute":"data-cmtooltip", "format":"html"}]' tabindex='0' role='link'>migraine</a> affects 4.5 million (12%) of Canadians and that 1-2% live with <a class="glossaryLink" aria-describedby="tt" data-cmtooltip="<div class=glossaryItemTitle>Chronic Migraine</div><div class=glossaryItemBody>&lt;span style=&quot;font-weight: 400;&quot;&gt;Chronic migraine is a distinct and relatively recently defined sub-type of Chronic Daily Headache. The International Headache Society defines chronic migraine as more than fifteen headache days per month over a three month period of which more than eight are migrainous, in the absence of medication overuse. Episodic migraine is the other migraine sub-type, which is defined as less than 15 headache days per month.&lt;/span&gt;&lt;i&gt;&lt;span style=&quot;font-weight: 400;&quot;&gt;Reference : Written by Dr Fayyaz Ahmed MD FRCP MBA, &lt;/span&gt;&lt;/i&gt;&lt;i&gt;&lt;span style=&quot;font-weight: 400;&quot;&gt;https://www.migrainetrust.org/about-migraine/types-of-migraine/chronic-migraine/&lt;/span&gt;&lt;/i&gt;&lt;i&gt;&lt;span style=&quot;font-weight: 400;&quot;&gt;  july 4&lt;/span&gt;&lt;/i&gt;&lt;i&gt;&lt;span style=&quot;font-weight: 400;&quot;&gt;th&lt;/span&gt;&lt;/i&gt;&lt;i&gt;&lt;span style=&quot;font-weight: 400;&quot;&gt;,2019&lt;/span&gt;&lt;/i&gt;</div>" href="https://migrainecanada.org/glossary/chronic-migraine/" data-gt-translate-attributes='[{"attribute":"data-cmtooltip", "format":"html"}]' tabindex="0" role="link">chronic migraine</a>. People with <a class="glossaryLink" aria-describedby="tt" data-cmtooltip="<div class=glossaryItemTitle>Chronic Migraine</div><div class=glossaryItemBody>&lt;span style=&quot;font-weight: 400;&quot;&gt;Chronic migraine is a distinct and relatively recently defined sub-type of Chronic Daily Headache. The International Headache Society defines chronic migraine as more than fifteen headache days per month over a three month period of which more than eight are migrainous, in the absence of medication overuse. Episodic migraine is the other migraine sub-type, which is defined as less than 15 headache days per month.&lt;/span&gt;&lt;i&gt;&lt;span style=&quot;font-weight: 400;&quot;&gt;Reference : Written by Dr Fayyaz Ahmed MD FRCP MBA, &lt;/span&gt;&lt;/i&gt;&lt;i&gt;&lt;span style=&quot;font-weight: 400;&quot;&gt;https://www.migrainetrust.org/about-migraine/types-of-migraine/chronic-migraine/&lt;/span&gt;&lt;/i&gt;&lt;i&gt;&lt;span style=&quot;font-weight: 400;&quot;&gt;  july 4&lt;/span&gt;&lt;/i&gt;&lt;i&gt;&lt;span style=&quot;font-weight: 400;&quot;&gt;th&lt;/span&gt;&lt;/i&gt;&lt;i&gt;&lt;span style=&quot;font-weight: 400;&quot;&gt;,2019&lt;/span&gt;&lt;/i&gt;</div>" href="https://migrainecanada.org/glossary/chronic-migraine/" data-gt-translate-attributes='[{"attribute":"data-cmtooltip", "format":"html"}]' tabindex="0" role="link">chronic migraine</a> experience 15 or more headache days per month. I am one of these people and am greatly impacted by my <a class="glossaryLink"  aria-describedby="tt"  data-cmtooltip="<div class=glossaryItemTitle>Migraine</div><div class=glossaryItemBody>&lt;span style=&quot;font-weight: 400;&quot;&gt;A migraine is a powerful headache that often happens with nausea, vomiting, and sensitivity to light. Migraines can last from 4 hours to 3 days, and sometimes longer.Most people start having migraine headaches between ages 10 and 40. But many women find that their migraines improve or disappear after age 50.&lt;/span&gt;&lt;i&gt;&lt;span style=&quot;font-weight: 400;&quot;&gt;Référence : webmd.com, &lt;/span&gt;&lt;/i&gt;&lt;i&gt;&lt;span style=&quot;font-weight: 400;&quot;&gt;https://www.webmd.com/migraines-headaches/migraines-headaches-migraines#1&lt;/span&gt;&lt;/i&gt;&lt;i&gt;&lt;span style=&quot;font-weight: 400;&quot;&gt;  consulted on july 4&lt;/span&gt;&lt;/i&gt;&lt;i&gt;&lt;span style=&quot;font-weight: 400;&quot;&gt;th&lt;/span&gt;&lt;/i&gt;&lt;i&gt;&lt;span style=&quot;font-weight: 400;&quot;&gt;,2019.&lt;/span&gt;&lt;/i&gt;</div>"  href="https://migrainecanada.org/glossary/migraine/"  data-gt-translate-attributes='[{"attribute":"data-cmtooltip", "format":"html"}]' tabindex='0' role='link'>migraine</a> disorder and there is no cure. Finding and accessing an effective medication is critical.

Although current therapies are sufficient for some Canadian patients to manage their <a class="glossaryLink"  aria-describedby="tt"  data-cmtooltip="<div class=glossaryItemTitle>Migraine</div><div class=glossaryItemBody>&lt;span style=&quot;font-weight: 400;&quot;&gt;A migraine is a powerful headache that often happens with nausea, vomiting, and sensitivity to light. Migraines can last from 4 hours to 3 days, and sometimes longer.Most people start having migraine headaches between ages 10 and 40. But many women find that their migraines improve or disappear after age 50.&lt;/span&gt;&lt;i&gt;&lt;span style=&quot;font-weight: 400;&quot;&gt;Référence : webmd.com, &lt;/span&gt;&lt;/i&gt;&lt;i&gt;&lt;span style=&quot;font-weight: 400;&quot;&gt;https://www.webmd.com/migraines-headaches/migraines-headaches-migraines#1&lt;/span&gt;&lt;/i&gt;&lt;i&gt;&lt;span style=&quot;font-weight: 400;&quot;&gt;  consulted on july 4&lt;/span&gt;&lt;/i&gt;&lt;i&gt;&lt;span style=&quot;font-weight: 400;&quot;&gt;th&lt;/span&gt;&lt;/i&gt;&lt;i&gt;&lt;span style=&quot;font-weight: 400;&quot;&gt;,2019.&lt;/span&gt;&lt;/i&gt;</div>"  href="https://migrainecanada.org/glossary/migraine/"  data-gt-translate-attributes='[{"attribute":"data-cmtooltip", "format":"html"}]' tabindex='0' role='link'>migraine</a>, for many, like me, these therapies are ineffective leaving me in pain, bedridden and disabled. There have not been any effective preventative medications designed to treatment <a class="glossaryLink"  aria-describedby="tt"  data-cmtooltip="<div class=glossaryItemTitle>Migraine</div><div class=glossaryItemBody>&lt;span style=&quot;font-weight: 400;&quot;&gt;A migraine is a powerful headache that often happens with nausea, vomiting, and sensitivity to light. Migraines can last from 4 hours to 3 days, and sometimes longer.Most people start having migraine headaches between ages 10 and 40. But many women find that their migraines improve or disappear after age 50.&lt;/span&gt;&lt;i&gt;&lt;span style=&quot;font-weight: 400;&quot;&gt;Référence : webmd.com, &lt;/span&gt;&lt;/i&gt;&lt;i&gt;&lt;span style=&quot;font-weight: 400;&quot;&gt;https://www.webmd.com/migraines-headaches/migraines-headaches-migraines#1&lt;/span&gt;&lt;/i&gt;&lt;i&gt;&lt;span style=&quot;font-weight: 400;&quot;&gt;  consulted on july 4&lt;/span&gt;&lt;/i&gt;&lt;i&gt;&lt;span style=&quot;font-weight: 400;&quot;&gt;th&lt;/span&gt;&lt;/i&gt;&lt;i&gt;&lt;span style=&quot;font-weight: 400;&quot;&gt;,2019.&lt;/span&gt;&lt;/i&gt;</div>"  href="https://migrainecanada.org/glossary/migraine/"  data-gt-translate-attributes='[{"attribute":"data-cmtooltip", "format":"html"}]' tabindex='0' role='link'>migraine</a> since 1993.  These new CGRP’s have given me back many days of normal function and improved quality of life.

Insert your personal story here (optional)

For more impact, you can personalize the message with your lived experience. Think about including
• What life was like pre-treatment on CGRP
• What life was like once you started a CGRP (include brand name)
• What the benefits an effective treatment made to quality of life, work life, home life, etc. (ie. reduction in number or severity that allowed you to do X)
• Why you are not taking CGRP and what your personal situation is like.

Message Bottom Part*

Bottom part of the letter

As a person living with <a class="glossaryLink" aria-describedby="tt" data-cmtooltip="<div class=glossaryItemTitle>Chronic Migraine</div><div class=glossaryItemBody>&lt;span style=&quot;font-weight: 400;&quot;&gt;Chronic migraine is a distinct and relatively recently defined sub-type of Chronic Daily Headache. The International Headache Society defines chronic migraine as more than fifteen headache days per month over a three month period of which more than eight are migrainous, in the absence of medication overuse. Episodic migraine is the other migraine sub-type, which is defined as less than 15 headache days per month.&lt;/span&gt;&lt;i&gt;&lt;span style=&quot;font-weight: 400;&quot;&gt;Reference : Written by Dr Fayyaz Ahmed MD FRCP MBA, &lt;/span&gt;&lt;/i&gt;&lt;i&gt;&lt;span style=&quot;font-weight: 400;&quot;&gt;https://www.migrainetrust.org/about-migraine/types-of-migraine/chronic-migraine/&lt;/span&gt;&lt;/i&gt;&lt;i&gt;&lt;span style=&quot;font-weight: 400;&quot;&gt;  july 4&lt;/span&gt;&lt;/i&gt;&lt;i&gt;&lt;span style=&quot;font-weight: 400;&quot;&gt;th&lt;/span&gt;&lt;/i&gt;&lt;i&gt;&lt;span style=&quot;font-weight: 400;&quot;&gt;,2019&lt;/span&gt;&lt;/i&gt;</div>" href="https://migrainecanada.org/glossary/chronic-migraine/" data-gt-translate-attributes='[{"attribute":"data-cmtooltip", "format":"html"}]' tabindex="0" role="link">chronic migraine</a>, I am asking the government to include CGRP’s on our drug plan immediately. Without access to this medication, I have no quality of life. I am not able to be a productive member of society and I not able to be the parent and spouse compared to when I am <a class="glossaryLink"  aria-describedby="tt"  data-cmtooltip="<div class=glossaryItemTitle>Migraine</div><div class=glossaryItemBody>&lt;span style=&quot;font-weight: 400;&quot;&gt;A migraine is a powerful headache that often happens with nausea, vomiting, and sensitivity to light. Migraines can last from 4 hours to 3 days, and sometimes longer.Most people start having migraine headaches between ages 10 and 40. But many women find that their migraines improve or disappear after age 50.&lt;/span&gt;&lt;i&gt;&lt;span style=&quot;font-weight: 400;&quot;&gt;Référence : webmd.com, &lt;/span&gt;&lt;/i&gt;&lt;i&gt;&lt;span style=&quot;font-weight: 400;&quot;&gt;https://www.webmd.com/migraines-headaches/migraines-headaches-migraines#1&lt;/span&gt;&lt;/i&gt;&lt;i&gt;&lt;span style=&quot;font-weight: 400;&quot;&gt;  consulted on july 4&lt;/span&gt;&lt;/i&gt;&lt;i&gt;&lt;span style=&quot;font-weight: 400;&quot;&gt;th&lt;/span&gt;&lt;/i&gt;&lt;i&gt;&lt;span style=&quot;font-weight: 400;&quot;&gt;,2019.&lt;/span&gt;&lt;/i&gt;</div>"  href="https://migrainecanada.org/glossary/migraine/"  data-gt-translate-attributes='[{"attribute":"data-cmtooltip", "format":"html"}]' tabindex='0' role='link'>migraine</a> free or have reduced severity and/or frequency. I will continue to be a burden to the healthcare system with frequent visits to the emergency department and appointements with my doctor(s). This stress on our healthcare system can be avoided by including these medications on our provincial drug plan.

I hope by what I have shared will help to reduce stigma and contribute to your team making a policy to include CGRP’s on our provincial formulary. Public coverage for me is the only way I can access this class of medications.

Sincerely,

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