Advocacy letter for people who have stopped treatment


                
                        
                            Make Your Voice Heard ! - Past CGRP Patients
                            This form can be used by Canadian patient advocates to contact their local government representatives and 
provincial health minister.
                        
 
 
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Recipients*Enter your postal code to find your local representatives.
Subject*Subject of the email that will be sent
 
Dear [Name of the Government Representative will be added automatically]
Message Top Part*First half of the letter
I am writing to you as my elected official to raise awareness and discuss the new anti-CGRP class of medications to treat migraine. These new, effective, safe, and tolerable medications are life-changing for many migraine patients and currently are not covered by our provincial drug program. 

Experts estimate that migraine affects 4.5 million (12%) of Canadians and that 1-2% live with chronic migraine. People with chronic migraine experience 15 or more headache days per month. I am one of these people and am greatly impacted by my migraine disorder and there is no cure. Finding and accessing an effective medication is critical.

Although current therapies are sufficient for some Canadian patients to manage their migraine, for many, like me, these therapies are ineffective leaving me in pain, bedridden and disabled. There have not been any effective preventative medications designed to treatment migraine since 1993.  These new CGRP’s have given me back many days of normal function and improved quality of life.
Insert your personal story here (optional)For more impact, you can personalize the message with your lived experience.  Think about including

•   What life was like pre-treatment on CGRP
 
•   What life was like once you started a CGRP (include brand name)

•   What the benefits an effective treatment made to quality of life, work life, home life, etc. (ie. reduction in number or severity that allowed you to do X)

•   Why you are not taking CGRP and what your personal situation is like.

Message Bottom Part*Bottom part of the letter
As a person living with chronic migraine, I am asking the government to include CGRP’s on our drug plan immediately. Without access to this medication, I have no quality of life. I am not able to be a productive member of society and I not able to be the parent and spouse compared to when I am migraine free or have reduced severity and/or frequency. I will continue to be a burden to the healthcare system with frequent visits to the emergency department and appointements with my doctor(s). This stress on our healthcare system can be avoided by including these medications on our provincial drug plan.  

I hope by what I have shared will help to reduce stigma and contribute to your team making a policy to include CGRP’s on our provincial formulary. Public coverage for me is the only way I can access this class of medications.

Sincerely,
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Here is an example of the letter

Note: After submitting the form, an email containing the PDF letter will be sent to each of your selected representatives. You will receive a copy of that email.